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Non-Government Organisations

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Not-for-profit representative, activist and lobby organisations
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 Last Updated:
16 October 2003

 
 
Peak Organisations
Council for International Organizations of Medical Sciences (CIOMS) (Geneva) - international, non-governmental, non-profit organization whose membership includes 48 international member organizations and 18 national members, which aims to facilitate and promote international activities in the field of biomedical sciences and to maintain collaborative relations with the United Nations and its specialized agencies
World Health Organization (WHO) (Geneva) - United Nations specialized agency for health, whose objective, as set out in its Constitution, is the attainment by all peoples of the highest possible level of health
 
Development & Assistance
Bill & Melinda Gates Foundation's Global Health Program (Seattle, WA, USA) - focused on reducing global health inequities by accelerating the development, deployment, and sustainability of health interventions that will save lives and dramatically reduce the disease burden in developing countries
Canadian Physicians for Aid and Relief (CPAR) (Toronto, Canada) - non-profit, non-sectarian organization that broadly defines health to include human well-being, environmental integrity, and social justice, and which is dedicated to supporting vulnerable, low-income people in the developing world in their efforts to achieve good health
Canadian Society for International Health (CSIH) (Ottawa, Canada) - national non-governmental organization with members who are committed to the promotion of international health and development and who offer a solid network of experts and experience with the Canadian government, international agencies, non-governmental organizations and academia
Centre for International Health (University of Toronto, Canada) - aims to achieve excellence in research and teaching by enabling existing international health endeavors to reach new heights and by promoting, developing, facilitating and executing new research, educational programs and by extending the range of innovative professional development opportunities and activities that are available to both faculty and students
Centre for International Health (Melbourne, Australia) - accredited development NGO committed to improving the health of communities in developing nations and among Aboriginal Australians through strengthening primary health care and the control of communicable diseases, focusing on the development and delivery of effective responses to the identified needs of those communities and nations
Counterpart International (Washington, DC) - provides humanitarian assistance in the form of medical and other special care needs for vulnerable people, works around the world with local NGOs to support the development of civil and democratic societies, promotes sustainable use and conservation of natural resources through community-based resource management, and focuses on community health promotion and primary health care, with a special emphasis on mothers and children
Doctors for Global Health (DGH) (Decatur, GA, USA) - private, not-for-profit organization which promotes health, education, art and other human rights throughout the world, attracting more than 500 active supporters, including doctors and other health care workers, students, educators, attorneys, and engineers who work within their own communities, and others working in El Salvador, Honduras, Mexico, Peru, Uganda and other countries
Doctors Without Borders (MSF) (Médecins Sans Frontières) (Belgium) - independent humanitarian medical aid agency committed to providing medical wherever needed, regardless of race, religion, politics or sex, and raising awareness of the plight of the people MSF helps
François-Xavier Bagnoud Center for Health and Human Rights (Harvard University, Boston, USA) - works at international and national levels through collaboration and partnerships with health and human rights practitioners, governmental and non-governmental organizations, academic institutions, and international agencies to: expand knowledge through scholarship, professional training, and public education; develop domestic and international policy focusing on the relationship between health and human rights in a global perspective; and engage scholars, public health and human rights practitioners, public officials, donors, and activists in the health and human rights movement
Global Health Council (Washington, DC) - international membership alliance of health-care professionals and organizations, including NGOs, foundations, corporations, government agencies and academic institutions, dedicated to saving lives by improving health throughout the world
Health & Development Network (HDN) (Ireland, South Africa and Thailand) - mobilizes, via electronic discussion forums, a
more effective response to HIV/AIDS and other health and development related issues by increasing the number of people
involved in popular discussion, promoting partnerships and networking, improving the quality of and access to information, and
increasing accountability and transparency in decision-making
Médecins Sans Frontières (MSF) (Doctors Without Borders) (Belgium) - independent humanitarian medical aid agency committed to providing medical wherever needed, regardless of race, religion, politics or sex, and raising awareness of the plight of the people MSF helps
Rehydration Project (Costa Rica) - private, non-profit, non-sectarian, international development group which works within the health framework of developing countries to help them achieve and maintain high levels of immunization, improve access to clean water and safe sanitation, support breastfeeding, promote hygiene education, produce Oral Rehydration Salts (ORS) and assist in ensuring that sufficient ORS is available
Satellife: Global Health Information Network (Watertown, MA, USA) - develops solutions to the everyday information needs of health professionals working in communities where AIDS and malaria are common place, but medical journals and the Internet are an unaffordable luxury, through innovative applications of information and communication technology
Scientists for Health And Research for Development (SHARED) - database of essential information on health research and development for developing countries
 
Disability
Handicap International (France) - works to reinforcement of local capabilities (simple orthopedic devices), support for development and integration initiatives (training of local technicians), and prevention of handicap-inflicting conditions (preventive medicine and social assistance)
Helen Keller Worldwide (New York, NY) - works to prevent blindness, restore sight and provide rehabilitation services to blind people
International Spinal Cord Society (ISCoS) (Aylesbury, UK) - international impartial, non-political and non-profit making association whose purpose is to study all problems relating to traumatic and non-traumatic lesions of the spinal cord. This includes causes, prevention, basic and clinical research, medical and surgical management, clinical practice, education, rehabilitation and social reintegration
Sight Savers International (Haywards Heath, UK) - combats blindness in developing countries by working alongside local organisations and governments to teach basic eye care skills and hygiene to adults and children, by helping to fund eye screening camps, operations, treatments, education, surgical training, as well as supporting rehabilitation programmes, and by helping to improve the quality of life for sufferers of irreversible blindness
 
Drugs & Drug Abuse
Drug Reform Coordination Network (Washington, DC) - educational and advocacy organization and network of citizens working for reform of US drug laws and an end to prohibition, or legalization, worldwide
Health Action International (HAI) (Amsterdam, Netherlands) - non-profit, global network of health, development, consumer and other public interest groups in more than 70 countries working for a more rational use of medicinal drugs and representing the interests of consumers in drug policy, believing that all drugs marketed should be acceptably safe, effective, affordable and meet real medical needs
International Harm Reduction Association (IHRA) (Melbourne, Australia) - international professional association for individuals and organisations concerned with the development of drug policies to reduce the harmful consequences of drug use and current drug policies
Mainline Foundation (Amsterdam, Netherlands) - independent, non-governmental organisation with a national and international reach, which strives to improve the health and quality of life of drug users through health education and prevention for drug users on the street
Multidisciplinary Association for Psychedelic Studies (MAPS) (Sarasota, FL, USA) - membership-based non-profit research and educational organization which assists scientists to design, fund, obtain approval for and report on studies into the healing and spiritual potentials of MDMA ('ecstacy'), psychedelic drugs and marijuana
Pharmaceutical Security Institute (PSI) (Vienna, VA, USA) - not-for-profit, membership organization dedicated to protecting the public health, sharing Information on the counterfeiting of pharmaceuticals, and initiating enforcement actions through the appropriate authorities
 
Health Care Industry
Health Care Without Harm (Washington, DC) - international coalition of over 400 organizations in more than 50 countries working to transform the health care industry so it is no longer a source of harm to people and the environment
International Alliance of Patients' Organizations (IAPO) (London) - global alliance representing patients of all nationalities across all disease areas, promoting patient-centred healthcare around the world, and advocating internationally with a strong patients' voice on relevant aspects of healthcare policy, with the aim of influencing international, regional and national health agendas and policies
 
Health Insurance
Association Internationale de la Mutualité (AIM) (Brussels) - grouping of autonomous health insurance and social protection bodies operating according to the principles of solidarity and non-profit-making orientation whose goal is to defend and promote, at international level, the social values and basic principles of human health and well-being, solidarity, autonomous management, and non-profit-making orientation
International Federation of Health Plans (iFHP) (London) - global network of the health insurance industry, with one hundred member companies in 25 countries, which aims to assist in the maintenance of high ethical and professional standards throughout the industry
International Social Security Association (ISSA) (Geneva) - international organization which brings together institutions and administrative bodies dealing with one or more aspects of social security in different countries of the world, namely all forms of compulsory social protection which, by virtue of legislation or national practice, are an integral part of the social security system of these countries
 
Immunisation
Global Alliance for Vaccines and Immunization (GAVI) (Geneva, Switzerland) - historic alliance between the private and public sector committed to the goal of saving children's lives and people's health through the widespread use of vaccines
Children's Vaccine Program (CVP) (Seattle, WA, USA) - aims to promote equal access to new and lifesaving vaccines worldwide by repairing crumbling immunization programs, building human and financial capacity within countries, and introducing new vaccines and immunization technologies
 
Mental Health
World Federation for Mental Health (WFMH) (Alexandria, VA, USA) - federation of members and contacts in 112 countries which works to advance, among all peoples and nations, the prevention of mental and emotional disorders, the proper treatment and care of those with such disorders, and the promotion of mental health
 
Sexual & Reproductive Health
Abortion Clinics OnLine (United States) - directory of websites of over 400 providers of abortion services and other reproductive health care in 40 American states, Australia, and other international countries
EngenderHealth (New York, NY) - nonprofit organization that works internationally to support and strengthen reproductive health services for women and men worldwide
Global Campaign for Microbicides (Washington, DC) - broad-based, international effort to build support among policymakers, opinion leaders, and the general public for increased investment into microbicides (products used to prevent the sexual transmission of HIV and other diseases) and other user-controlled prevention methods, through advocacy, policy analysis, and social science research
International Society for the Study of Vulvovaginal Disease (ISSVD) (Waxhaw, NC, USA) - group of approximately 200 gynecologists, dermatologists, pathologists and infectious disease specialists from all over the world who have distinguished themselves in some area of of the study of vulvovaginal disease
International Planned Parenthood Federation (IPPF) (UK) - community of over 180 national autonomous Family Planning Associations which promotes the right of women and men to decide freely the number and spacing of their children and the right to the highest possible level of sexual and reproductive health
Pacific Institute for Women's Health (Los Angeles, USA) - aims to improve the sexual and reproductive health and well being of women and girls, locally and globally, and sees access to contraception as fundamental to women's empowerment and autonomy, believing that it is every woman's right to decide if and when to have children
Program for Appropriate Technology in Health (PATH) (Seattle, WA, USA) - collaborating center aimed at improving health, especially the health of women and children, with an emphasis on improving the quality of reproductive health services and on preventing and reducing the impact of widespread communicable diseases
Reproductive Health Outlook (RHO) () - website that provides up-to-date summaries of research findings, program experience, and clinical guidelines related to key reproductive health topics, as well as analyses of policy and program implications, with the aim of helping users link with quality online resources and collaborate with colleagues around the world.
Reproductive Health for Refugees (RHR) Consortium (New York, NY) - aims to increase access to a broad range of quality, voluntary reproductive health services to refugees and displaced persons around the world
Youth Coalition for ICPD (International Conference on Population and Development) - international coalition of students, researchers, volunteers, educators, NGO workers and activists (aged 15-29 years) committed to promoting adolescent and youth sexual and reproductive rights at the national, regional and international levels
 
Alzheimer's Disease
Alzheimer's Disease International (ADI) (London) - umbrella organisation of Alzheimer associations around the world, which offer support and information to people with dementia and their caregivers
Cancers
Alliance for Cervical Cancer Prevention (ACCP) (New York, NY) - group of five international organizations with a shared goal of working to prevent cervical cancer in developing countries, by assessing innovative approaches to screening and treatment, improving service delivery systems, and raising awareness of cervical cancer and effective prevention strategies
International Agency for Research on Cancer (IARC) (Lyon, France) - part of the World Health Organization responsible for coordinating and conducting research on the causes of human cancer, the mechanisms of carcinogenesis, and the development of scientific strategies for cancer control, and for disseminating scientific information through publications, meetings, courses, and fellowships
International Association for the Study of Lung Cancer (IASLC) (Copenhagen, Denmark) - international organization of 1150 members in 53 countries which aims to promote the study of the etiology, the epidemiology, the prevention, the diagnosis, the treatment, and all other aspects of lung cancer and to disseminate information about lung cancer to the members of the Assocation, to the medical community at large, and to the public
International Network For Cancer Treatment and Research (INCTR) (Brussels) - dedicated to helping to build capacity for cancer treatment and research in countries in which such capacity is presently limited, and thereby to create a foundation on which to build strategies designed to lessen the suffering, limit the number of lives lost, and promote the highest quality of life for children and adults with cancer in these countries, and to increase the quantity and quality of cancer research throughout the world
International Union Against Cancer (UICC) (Geneva, Switzerland) - independent, international, non-governmental association of 291 member cancer fighting organisations in 87 countries whose membership and activities encompass all aspects of cancer control
Make-A-Wish Foundation International (Phoenix, AZ, USA) - not-for-profit organisation with affiliates in 27 countries and territories, which grants wishes to children around the world who are living with life-threatening illnesses
Cardiovascular Disease
Heart Care International (Greenwich CT, USA) - team of health care professionals who volunteer their time and skills to provide open heart surgery for poor children and young adults in developing countries and to train local health care professionals in the medical and surgical management of heart disease, enabling them to provide heart care within their own community
International Academy of Cardiology (Beverly Hills, CA, USA) - dedicated to the advancement of global research in cardiovascular medicine through the support of scientific meetings and publications
International Society for Adult Congenital Cardiac Disease (Raleigh, NC, USA) - seeks to promote, maintain and pursue excellence in the care of adolescents and adults with congenital cardiac disease
International Society for Heart Research (ISHR) (University of Louisville, USA) - organisation of over 3000 members worldwide which aims to promote the discovery and dissemination of knowledge in the cardiovascular sciences on a world-wide basis through publications, congresses and other media
International Society on Hypertension in Blacks (ISHB) (Atlanta, GA, USA) - not-for-profit, professional, medical membership Society devoted to improving the health and life expectancy of ethnic populations, specifically in the areas of hypertension, diabetes, stroke, lipid disorders, renal disease, and other related cardiovascular diseases
International Task Force for Prevention of Coronary Heart Disease (Muenster, Germany) - aims to diffuse, at an international level, easily assimilable information on the prevention of coronary heart disease for physicians, medical professionals and the public
Society for Vascular Medicine and Biology (SVMB) (Beverly, MA, USA) - professional organization whose goals are to improve the integration of vascular biological advances into medical practice, and to maintain high standards of clinical vascular medicine
World Heart Federation (Geneva) - global effort to help people achieve a longer and better life through prevention and control of heart disease and stroke, with a focus on low and middle income countries
World Hypertension League (WHL) (Toledo, OH, USA) - professional society devoted to the advancement of hypertension prevention and control through joint efforts of all national leagues and societies, and the the exchange of information among its member organizations about internationally applicable methods and programs for hypertension control
Diarrhoeal Diseases
International Centre for Diarrhoeal Disease Research (ICDDR,B) (Dhaka, Bangladesh) - international health research institution that conducts research, training and extension activities as well as programme-based activities relating to diarrhoeal diseases
Eye/Optic Diseases
Association for Research in Vision and Ophthalmology (ARVO) (Washington, DC) - membership organisation of more than 10,000 individuals from over 68 countries, including ophthalmologists, PhDs, optometrists, osteopaths, and veterinarians, which aims encourage and assist research, training, publication, and dissemination of knowledge in vision and ophthalmology
Eye Cancer Network - educational web-site about the diagnosis and treatment of eye tumor patients
Glaucoma Foundation (New York, NY) - not-for-profit organization committed to leading the fight against glaucoma, an affliction which produces increased pressure within the eyes of 67 million people worldwide, and to identifying new treatments and cures
International Foundation for Optic Nerve Disease (IFOND) (Cornwall, NY, USA) - provides and disseminates information on causes, prevention and treatment of Ischemic Optic Neuropathy, Primary Glaucomatous Optic Nerve Disease (GOND), Toxic Optic Nerve Disease, and Leber's Hereditary Optic Neuropathy (LHON), which together affect millions of people worldwide
International Society for Genetic Eye Diseases (ISGED) (Cleveland, OH, USA) - brings together individuals interested in the field of genetic diseases of the eye and provides a forum for researchers in the field of genetic diseases of the eye to share information
International Society for Eye Research (ISER) (San Francisco, USA) - charitable and educational oganisation dedicated to the general advancement of knowledge on the function of the eye, on the prevention and cure of eye diseases and on the process of vision
International Society for Orbital Disorders (ISOB) (Amsterdam, Netherlands) - international group with approximately 200 members around the world from the disciplines and subdisciplines of ophthalmology, neurophthalmology, plastic surgery, neurosurgery, neuroradiology, craniofascial surgery, and anoplastology, whose mission is to promote educational and professional interaction between orbitologists in order to provide optimal care for patients who suffer from diseases of the eye socket
HIV/AIDS
Aids.org (United States) - gateway to quality treatment information and resources "because good information is the best cure for
AIDS"
Health Global Access Project (HGAP) Coalition (San Francisco, USA) - organization of U.S.-based AIDS and human rights activists, people living with HIV/AIDS, public health experts, fair trade advocates and concerned individuals who campaign against policies of neglect and avarice that deny treatment to millions and fuel the spread of HIV
Global Fund to fight AIDS, Tuberculosis and Malaria (Geneva) - attracts, manages and disburses additional resources
through a public-private partnership that makes a sustainable and significant contribution to the reduction of infections, illness and death, thereby mitigating the impact caused by HIV/AIDS, tuberculosis and malaria in countries in need, and contributing to
poverty reduction as part of the United Nations' Millenium Development goals
International AIDS Society (IAS) (Stockholm, Sweden) - represents the world's professional society for scientists, health care and public health workers, and others engaged in HIV/ AIDS prevention, control and care
International Association of Physicians in AIDS Care (IAPAC) (Chicago, USA) - aims to craft and implement global educational and advocacy strategies to improve the quality of care provided to all people living with HIV/AIDS and associated co-infectious diseases
Joint United Nations programme on HIV/AIDS (UNAIDS) - leading advocate for worldwide action against HIV/AIDS, whose role is to ead, strengthen and support an expanded response to the epidemic that will prevent the spread of HIV, provide care and support for those infected and affected by the disease, reduce the vulnerability of individuals and communities to HIV/AIDS, and alleviate the socioeconomic and human impact of the epidemic
Stop Aids Campaign (UK) - coalition of groups across the UK who are campaigning for a greatly scaled up UK and international response to the epidemic
UK Consortium on AIDS and International Development (London, UK) - group of more than 60 UK-based organisations which aims to promote an effective global response to HIV and AIDS that contributes to sustainable development and to encourage, initiate and support collaborative action by civil society to contribute to and influence the global response to HIV and AIDS
Infectious Diseases
International Society for Infectious Diseases (ISID) (Boston, MA, USA) - brings together all individuals interested in infectious diseases, including infectious disease specialists, microbiologists, immunologists, epidemiologists, public health workers, parasitologists, virologists, mycologists, molecular biologists, and others with similar concerns
Malaria
Global Fund to fight AIDS, Tuberculosis and Malaria (Geneva) - attracts, manages and disburses additional resources
through a public-private partnership that makes a sustainable and significant contribution to the reduction of infections, illness and death, thereby mitigating the impact caused by HIV/AIDS, tuberculosis and malaria in countries in need, and contributing to
poverty reduction as part of the United Nations' Millenium Development goals
Save Children Fom Malaria - international public health campaign dedicated to preserving the limited use of small amounts of the pesticide DDT inside buildings, in particular homes and hospitals, to fight malaria
Motor Neurone Disease
International Alliance of ALS/MND Associations (Northampton, UK) - peak body for national organisations who support people living with ALS (Amyotrophic Lateral Sclerosis) and MND (Motor Neurone Disease), characterised by progressive degeneration of the motor cells in the brain and spinal cord
Orphan/Rare Diseases
International Joseph Diseases Foundation (IJDF) (Redding, CA , USA) - non-profit charitable corporation whose mission is to locate individuals and families, worldwide, who may be afflicted with Machado Joseph-Disease (MJD), a genetic disorder of the central nervous system that cripples and paralyzes
International Rare Disease Support Network (IRDSN) (Plano, TX, USA) - world wide health organization dedicated to enhancing the lives of people affected by rare 'orphan' diseases or disorders, which enables members to begin making friends, sharing information and support with others around the world who have also been affected by the same 'little known' disorder
International Society for Behçet's Disease (ISBD) (Chagford, UK) - multidisciplinary society that aims to advance the knowledge of the aetiology, pathogenesis, diagnosis, natural history, clinical features, treatment and management of Behçet's Disease, a multisystem disease of unknown cause, seen particularly in young males, characterized by mucous membrane ulceration, iridocyclitis with hypopyon, recurrent pyoderma, arthralgia, thrombophlebitis and neurologic abnormalities
International Society for Mannosidosis & Related Diseases (ISMRD) (Baltimore, MD, USA) - advocacy organisation for families worldwide affected by an Glycoprotein & Related Storage Disease, very rare inherited disorders caused by a defect in the breakdown of complex molecules in the cells, resulting in the "storage" of these molecules in small cellular organelles called lysosomes
International Still's Disease Foundation (Panama City, FL, USA) - provides support to those who suffer from Still's Disease, a form of arthritis that is characterized by high spiking fevers and evanescent (transient) salmon-colored rash, primarily in children
Wilson's Disease Association (WDA) (Wooster, OH, USA) - international, all-volunteer organization serving patients, families, and friends of those afflicted with Wilson's Disease, a genetic disorder that causes excessive copper accumulation in the liver or brain, which affects about one in thirty thousand people worldwide
Tuberculosis (TB)
Global Fund to fight AIDS, Tuberculosis and Malaria (Geneva) - attracts, manages and disburses additional resources
through a public-private partnership that makes a sustainable and significant contribution to the reduction of infections, illness and death, thereby mitigating the impact caused by HIV/AIDS, tuberculosis and malaria in countries in need, and contributing to
poverty reduction as part of the United Nations' Millenium Development goals
International Union Against Tuberculosis and Lung Disease (UNION) (Paris, France) - works for the prevention and control of tuberculosis and lung disease, as well as related health problems, on a world wide basis, with a particular emphasis on low income countries, by promoting national autonomy within the framework of the priorities of each country by developing, implementing and assessing anti-tuberculosis and respiratory health programmes
Stop TB Movement (Geneva, Switzerland) - global movement hosted by the World Health Organization (WHO) aimed at accelerating social and political action to stop the unnecessary spread of tuberculosis around the world